Anti-NMDA-receptor encephalitis described as causing violent behavior and paranoia

 

 

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3 thoughts on “Anti-NMDA-receptor encephalitis described as causing violent behavior and paranoia

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  1. hello, i am the mother of and 29 yr old son who is in Seoul S. Korea who has been diagnosed with Anti-NMDAR Encephalitis. My son Sean has been in the hospital about 5 weeks the doctors say he will be in hospital from up up to 6months to and year. the bills are racking up very quickly. i am asking for any and all information on how i can help my son. My son Sean Jones has been in S. Korea as an Native English Teacher for 2 years. Korean is a long way awy from Oklahoma City OK. i would like to be with my son but finances prevent that. i wish we could bring my son back home to United States were i feel he could get better care. i also would greatly appricate all and any infomation concerning this Anti-NMDAR Encephalitis. …

  2. Im currently a wounded warrior at walter reed and I to have suffered from the autoimmune encephilits and would love to speak with you since this is a rare case and maybe get further information that can help my doctors I was medivacted from the milled east in dec 2012 thank you very much

  3. Hi Robert,

    Thank you for your service!

    Susannah Cahalan can be reached on her Facebook Fan page Brain on Fire. Here is a link:

    https://www.facebook.com/BrainonFirebook

    My name is Maria Mangicaro and I put this site together after having suffered from toxic encephalopathy and Hashimoto’s encephalopathy.

    Here is a link to a narrative I wrote that was published in the Journal of Participatory Medicine that explains more:

    http://www.jopm.org/perspective/narratives/2011/03/28/psychosis-possibly-linked-to-an-occupational-disease-an-e-patient%E2%80%99s-participatory-approach-to-consideration-of-etiologic-factors/

    I am also a volunteer for a nonprofit organization near Tampa called Quantum Leap Farm. QLF works closely with the Wounded Warriors Project and the equine therapies help with all types of brain injuries. Here are some links

    http://quantumleapfarm.org/

    http://qlfequinetherapies.wordpress.com/2012/07/21/horses-helping-to-heal-military-veterans/

    Please feel free to contact me if I can be of any further help

    mangicaro829@aol.com

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